“Our brother Stephen was living with ALS and we thought, ‘there has to be a better way.’ There is. By sharing our experiences, we can all contribute new data that can accelerate research and help create better treatments. Our experiences can actually change medicine… for good.”
http://www.patientslikeme.com/
I've been following this site for a few years...it started with ALS...
挑战胡叔。。