The inner steel of a “butterfly child”: 12-year-old Russell boy optimistic in battle

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For 12-year-old Jonathan Pitre, life is divided into two categories: good skin weeks and bad skin weeks. Jonathan lives with a rare skin disorder, Epidermolysis Bullosa (EB), that causes a never-ending series of painful and disfiguring blisters. His skin is so sensitive that his body must be wrapped in gauze to protect it from even the mildest trauma.

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