- 注册
- 2002-10-07
- 消息
- 402,307
- 荣誉分数
- 76
- 声望点数
- 0
17,000: The number of live births that produce one case of EB
25: The percentage chance that two parents, both of whom carry the gene for EB but don’t know it, will give birth to a child with the disease
13: The number of major genes that have been identified as playing a role in the development of EB; the genetic defects mean the body’s skin layers do not adhere well to each other
3: The number of main EB types
70: The percentage of EB cases diagnosed as EB Simplex, which causes the skin to blister but still allows its sufferers to lead reasonably unrestricted lives
25: The percentage of EB cases diagnosed as recessive dystrophic EB, a severe form of the disease that causes blistering, joint contractures, and the fusion of fingers and toes; those with RDEB are also susceptible to an aggressive form of skin cancer (This is the kind of EB that afflicts Jonathan Pitre)
$200,000: The amount of money that Jonathan Pitre has raised for the EB charity, DEBRA Canada, since the Citizen wrote about him, and photographed his wounds, in October 2014
$720: The cost of entering a foursome in the first annual Jonathan Pitre Charity Golf Classic at Falcon Ridge Golf Club on July 22
0: The number of days, during his 16 years, that Jonathan Pitre has been free from the pain of EB.
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25: The percentage chance that two parents, both of whom carry the gene for EB but don’t know it, will give birth to a child with the disease
13: The number of major genes that have been identified as playing a role in the development of EB; the genetic defects mean the body’s skin layers do not adhere well to each other
3: The number of main EB types
70: The percentage of EB cases diagnosed as EB Simplex, which causes the skin to blister but still allows its sufferers to lead reasonably unrestricted lives
25: The percentage of EB cases diagnosed as recessive dystrophic EB, a severe form of the disease that causes blistering, joint contractures, and the fusion of fingers and toes; those with RDEB are also susceptible to an aggressive form of skin cancer (This is the kind of EB that afflicts Jonathan Pitre)
$200,000: The amount of money that Jonathan Pitre has raised for the EB charity, DEBRA Canada, since the Citizen wrote about him, and photographed his wounds, in October 2014
$720: The cost of entering a foursome in the first annual Jonathan Pitre Charity Golf Classic at Falcon Ridge Golf Club on July 22
0: The number of days, during his 16 years, that Jonathan Pitre has been free from the pain of EB.
查看原文...
