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Donations have started to pour in to Jonathan Pitre’s chosen charity as people honour the memory of the Russell teenager who died last week in Minnesota.
DEBRA Canada, a charity that helps those afflicted with epidermolysis bullosa (EB), has received more than $27,000 in donations since Pitre’s death was made public Friday.
The charity has posted an online memorial page for Pitre.
“Jonathan will be greatly missed,” the page reads. “He touched the lives of so many and made an enormous impact sharing his EB story to millions around the world.”
Pitre’s mother, Tina Boileau, serves as president of DEBRA Canada. For more than five years, Jonathan was an official EB ambassador.
In September 2012, Boileau and Pitre were invited members of a patient panel during a DEBRA International conference held in Toronto. The experience changed Pitre’s life — it was the first time he had met other EB patients — and he resolved to dedicate his life to helping others with the same disease.
Pitre became the public face of EB in Canada and shared his story worldwide. He bared his raw, red wounds for photographers and let them film him during his baths, blister piercings and dressing changes.
Pitre, 17, died in the University of Minnesota Masonic Children’s Hospital on the evening of April 4 from the complications of septic shock while in pursuit of an experimental treatment for EB, a genetic skin disease that is among the most painful known to modern medicine.
查看原文...
DEBRA Canada, a charity that helps those afflicted with epidermolysis bullosa (EB), has received more than $27,000 in donations since Pitre’s death was made public Friday.
The charity has posted an online memorial page for Pitre.
“Jonathan will be greatly missed,” the page reads. “He touched the lives of so many and made an enormous impact sharing his EB story to millions around the world.”
Pitre’s mother, Tina Boileau, serves as president of DEBRA Canada. For more than five years, Jonathan was an official EB ambassador.
In September 2012, Boileau and Pitre were invited members of a patient panel during a DEBRA International conference held in Toronto. The experience changed Pitre’s life — it was the first time he had met other EB patients — and he resolved to dedicate his life to helping others with the same disease.
Pitre became the public face of EB in Canada and shared his story worldwide. He bared his raw, red wounds for photographers and let them film him during his baths, blister piercings and dressing changes.
Pitre, 17, died in the University of Minnesota Masonic Children’s Hospital on the evening of April 4 from the complications of septic shock while in pursuit of an experimental treatment for EB, a genetic skin disease that is among the most painful known to modern medicine.
查看原文...
