安省自由党拒绝为五岁以上自闭症儿童进行IBI治疗，家长愤怒

[冷笑9声]

这个有点道理，说到底还是政府没钱。

没爬楼，瞎得吧一句：没钱？ 关个电厂多少钱？

 

[New Person]

等候时间长，就砍掉一部分等候的孩子，这是个好东西？而不是想办法减少等候时间？这办法很好。

等候时间长 is general issue。 等候时间当然越短越好。但这只是个理想。

 

[金陵]

没爬楼，瞎得吧一句：没钱？ 关个电厂多少钱？

支持！就是吗，关电厂有钱，养难民有钱，向国际组织捐款有钱，轮到自己家里的病孩子就是没钱增加服务了。这是什么逻辑？！

 

[ottawa_it_blue_collar]

没爬楼，瞎得吧一句：没钱？ 关个电厂多少钱？

用别人的钱买两个区选票，这种无本买卖，很值。

 

[New Person]

这个有点道理，说到底还是政府没钱。

这也不仅仅是有钱没钱的事，记得Onarior Heath care 已经是buget的41%。 作为病人／家属当然希望钱越多越好。

 

[ottawa_it_blue_collar]

这也不仅仅是有钱没钱的事，记得Onarior Heath care 已经是buget的41%。 作为病人／家属当然希望钱越多越好。

可以每年还债务一百多亿的利息。

 

[New Person]

可以每年还债务一百多亿的利息。

这个哪个省都不少。至于是否应该借债度日，那是另个理念问题。

 

[鼹鼠的故事]

我听专业人士讲过，IBI是一种很高强度的训练性的治疗方法，对提供IBI服务的therapist其教育和培训资质有很高的要求（好像要有硕士学位）。而ABA呢，从强度和训练方法都有很大不同，一个在college读了两年八杆子打不着的专业的人，在这个圈里混一阵就有资格说自己提供ABA服务了(混入CHEO和OCTC还是很难的，都在社会上的私人机构里或做个体户)。当然，实践中硕士毕业生不必然比一个业余出身的优秀，但毕竟IBI门槛高，有一定的监管，ABA就绝对是鱼龙混杂了。


由于自闭症孩子状况和性格不同，IBI对某些自闭症孩子特别有效，某些就绝对没有。如果一个孩子属于后者，那这次的改革就不会对他造成啥损害；但如果一个孩子属于前者，按照新的政策，为了减少排队时间让他上ABA吧，效果会大打折扣（一周一个小时，但因为自闭症的特殊性，往往孩子真正能involve的时间绝对少于一个小时）。


这项改革初衷是好的，减少排队时间，但不应该剥夺了5岁以上孩子试一下IBI是否适合他

的机会。其实适合不适合，试验有限的时间就看出来了。专业人士和家长都能看出来的。不适合就转做强度低的ABA，把位置转给下一个等候IBI的孩子。


有人提到一个家庭可以拿到8000块，的确是这样写在网站上，1.啥时候拿到不知道；2.这是一次性的买断，孩子只能去私人机构了，那里的IBI死贵，估计就够几个月的，效果就真的不好说了…….因为没有监管，而且自闭这个病症没有啥硬性指标）。


目前自闭症孩子除了排长队等OHIP cover的治疗（这个治疗是有限期的，要尽量给后面排队的人腾位置），就只能向两个私人机构的慈善基金申请一次性资助（只针对低收入家庭，且只能支付3至6个月的费用）。在Loblaws和Superstore结帐时，如果有PC charity募捐，那就是请大家为帮助自闭症的孩子出力呢。(备注，不是广告，我跟这个公司一点关系都没有!)

 

[鼹鼠的故事]

前面ishare说的好，我也觉得整个社会应该增强对自闭症的理解和关注了。我孩子的学校(小学)每年捐款n次，每次都给出最低不能低于多少的数额，各个班还比赛哪个班捐的多。今天又是捐款日，早晨我一边塞钱，一边嘀咕，怎么就没有一次是给自闭症捐款呢。按说鼓励孩子为帮助那些不能像他们一样正常交流和玩耍的同龄人捐款不是比让他们捐助某个他们根本就搞不懂的疾病的什么基金更让他们有一种责任和自豪感吗？自闭症患者在社会上是极其弱势的群体，他们的家庭又忙于对他们的照顾和治疗，可能社会上就很难听到他们或者代表他们的呼声了吧。

 

[New Person]

Highlights of the new program include:

• Reducing wait times so children can access services sooner
• Transitioning to the new integrated autism program by:
  • Focusing Intensive Behavioural Intervention (IBI) services to children in the appropriate developmental window: ages two to four
  • Gradually transitioning children five years and older currently receiving IBI to more clinically appropriate Applied Behaviour Analysis (ABA) services

[ishare] I doubt this. What I know (about 2-3 weeks back) is, suddenly "lots of" spots of IBI for children under 4 appeared, since most of the kids in IBI previously were transferred to ABA at one shot. It is not "gradually" at all. I totally don't understand how could parents or ABA therapists can handle this. I personally think the old kids should be given at least 6 months to transfer to ABA. The reason I double quote "lots of" is, I heard there are totally about 80 spots in IBI; only 80 for a city with 1m population.

• Providing families with children five years and older on the IBI waitlist with $8,000 in one-time funding to immediately purchase community services or supports based on their children's specific needs as they transition off the IBI waitlist

[ishare] The current program also give parents a choice to either receive a fund (not one-time), or service, so I don't know what this $8,000 one-time fund means. I may need to google around to see if there are any family already got this.

• Increasing the duration and intensity of ABA services over four years, starting in 2017, so that services are more flexible and based on children's individual needs.

[ishare] It is saying "starting in 2017", but most of the kids are already transferred to ABA. It is a sudden change for them at least for 1 year, right?


Please see my comments in blue. I have to say, in my very personal opinion (since I only have very limited data for the change), that the current provincial government is doing something under the table regarding health care (not only autism). My wife, a RPN in a complexity-care hospital, told me that recently they have lots of empty beds, which never happened before since waitlist is long...... I don't know if the provincial government is cutting the cost on this too without any announcement,

Thanks for your comments, I read them carefully, even I really don't know what is right. It's much better to have everyone think the topic individually according to all aspects.

 

[New Person]

[ishare] I highlighted the titles for all the commentators. Mostly like they are "part of government", but not parents of current IBI serviced kids.

I don't think these guys belong to government, and it's obviously the parents who have kids 5 years and older are very angry and the parents who have kids younger than 5 will be happy.

 

[ottawa_it_blue_collar]

这个哪个省都不少。至于是否应该借债度日，那是另个理念问题。

借钱太多，利息支出太多，其他地方没钱支持，是一个问题。安省利息支出占所有支出前三。

 

[New Person]

顶起来。比比谁的好。

 

[GuardianAngel]

 

[GuardianAngel]

顶起来。比比谁的好。

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