乡亲们请进

[soybean]

Walk with Yunfang's team, at the Walk to End ALS 2019 on Jun 8, 2019 10:00 AM in Ottawa!

You’re invited to join Yunfang's team in providing help and hope to people and families living with ALS. On Jun 8, 2019 10:00 AM we’ll be participating in the Ottawa Walk to End ALS and would love if you could join us!

Click on the link below and click on the “Join My Team” button.

http://www.alsevents.ca/yunfangsteam

Can't join us on WALK day but still want to support this cause we all share. Click on the link below and click on the "Donate to the team" which is a secure online donation portal and receive an electronic tax receipt.

http://www.alsevents.ca/yunfangsteam

Thank you for your support!

 

[冷笑六声]

还以为你要给每个人发2升黄豆捏！

 

[耶书仑]

Amyotrophic lateral sclerosis (ALS)
肌萎缩性脊髓侧索硬化

 

[soybean]

Yunfang 就是我。ALS，中文名渐冻症，是一种罕见病，很罕见以至于我去参加临床实验的时候取血的护士说我是他见过的唯一一个中国人。所以我有些孤单，但是又很欣慰，没有别的同胞得这么可怕的病。确诊以来得到了ALS clinic， ALS association的医护团队和工作人员的支持和帮助，同时受到朋友们和工作单位同事和老板无微不至地关心和照顾，让我觉得自己其实还挺幸运的。六月份是ALS awareness 月，同事帮我组了队伍为ALS Canada fundraising. 我也想尽一点力.

 

[soybean]

我要感谢CFC村民们，我虽然不常说话，但经常来观战，听歌，村民们机智幽默，热心，博学多才（都自己对号入座吧，不点名了），在这里我经常可以忘了ALS这回事。借着这个公益贴谢谢大家。也提钱跟大家打个招呼，如果我不再发言了，我不是换马甲了

 

[soybean]

还以为你要给每个人发2升黄豆捏！

一如既往的调皮

 

[向问天]

一如既往的调皮

Walk with Yunfang's team, at the Walk to End ALS 2019 on Jun 8, 2019 10:00 AM in Ottawa!

You’re invited to join Yunfang's team in providing help and hope to people and families living with ALS. On Jun 8, 2019 10:00 AM we’ll be participating in the Ottawa Walk to End ALS and would love if you could join us!

Click on the link below and click on the “Join My Team” button.

http://www.alsevents.ca/yunfangsteam

Can't join us on WALK day but still want to support this cause we all share. Click on the link below and click on the "Donate to the team" which is a secure online donation portal and receive an electronic tax receipt.

http://www.alsevents.ca/yunfangsteam

Thank you for your support!

Yunfang 就是我。ALS，中文名渐冻症，是一种罕见病，很罕见以至于我去参加临床实验的时候取血的护士说我是他见过的唯一一个中国人。所以我有些孤单，但是又很欣慰，没有别的同胞得这么可怕的病。确诊以来得到了ALS clinic， ALS association的医护团队和工作人员的支持和帮助，同时受到朋友们和工作单位同事和老板无微不至地关心和照顾，让我觉得自己其实还挺幸运的。六月份是ALS awareness 月，同事帮我组了队伍为ALS Canada fundraising. 我也想尽一点力.

这病加拿大能治吗？

 

[soybean]

这病加拿大能治吗？

不能，目前哪儿也不能，不过研究领域挺热的，总能见到新的paper出来，但是最多做到小鼠实验，你懂的

 

[冷笑六声]

一如既往的调皮

貌似你已经超额完成任务了！

 

[soybean]

貌似你已经超额完成任务了！

谢谢啊，我的CFC币分你一千块

 

[uglyducking]

晕方是什么药方？能治这个病吗？

Walk with Yunfang's team, at the Walk to End ALS 2019 on Jun 8, 2019 10:00 AM in Ottawa!

You’re invited to join Yunfang's team in providing help and hope to people and families living with ALS. On Jun 8, 2019 10:00 AM we’ll be participating in the Ottawa Walk to End ALS and would love if you could join us!

Click on the link below and click on the “Join My Team” button.

http://www.alsevents.ca/yunfangsteam

Can't join us on WALK day but still want to support this cause we all share. Click on the link below and click on the "Donate to the team" which is a secure online donation portal and receive an electronic tax receipt.

http://www.alsevents.ca/yunfangsteam

Thank you for your support!

 

[uglyducking]

我要感谢CFC村民们，我虽然不常说话，但经常来观战，听歌，村民们机智幽默，热心，博学多才（都自己对号入座吧，不点名了），在这里我经常可以忘了ALS这回事。借着这个公益贴谢谢大家。也提钱跟大家打个招呼，如果我不再发言了，我不是换马甲了

别提钱，一提钱就俗了



看了看钱面的帖子，还真提钱啦

 

[soybean]

晕方是什么药方？能治这个病吗？

嗯，一晕什么病都好了

 

[uglyducking]

嗯，一晕什么病都好了

哦

 

[冰中取火]

Yunfang 就是我。ALS，中文名渐冻症，是一种罕见病，很罕见以至于我去参加临床实验的时候取血的护士说我是他见过的唯一一个中国人。所以我有些孤单，但是又很欣慰，没有别的同胞得这么可怕的病。确诊以来得到了ALS clinic， ALS association的医护团队和工作人员的支持和帮助，同时受到朋友们和工作单位同事和老板无微不至地关心和照顾，让我觉得自己其实还挺幸运的。六月份是ALS awareness 月，同事帮我组了队伍为ALS Canada fundraising. 我也想尽一点力.

看到你这个消息，不知道说什么好了。坚持住！